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"Living with COPD/Emphysema and Sarcoidosis was a living
death. I existed. I struggled to breathe, when I moved I
panted, gasped for air like a fish out of water. As I slowly
showered and dressed, ready to go somewhere, I couldn't sit
down to rest. I fell asleep. I went from a physically active
life landscaping, restoring a wonderful property in Port
Townsend to a blob who existed in front of her computer. I
searched the world web to discover what COPD/Emphysema was -
what Sarcoidosis was, everything, anything I could find out
about my diseases and the medications I took.
I couldn't sleep in a bed - I couldn't breathe - I dozed
sitting in a chair. By the time I arrived at the Pulmonary
Department at the University of Washington Medical Center, I
believed my days were numbered. Previously diagnosed with COPD/Emphysema,
an open lung biopsy showed the fibrosis and granulomas of
Sarcoidosis evenly throughout both lungs. Without energy, I
felt isolated, without a purpose, a shell, a mockery of the
person I used to be.
I regretted a 40-year smoking habit, but didn't dwell on
it. The single most difficult thing I've ever done is stop
smoking. I craved cigarettes and for the first time understood
a drug addict's 'craving' for a drug. I craved a cigarette
many times a day, then almost daily for more than two years.
Even today, occasionally the urge to smoke a cigarette becomes
almost overwhelming.
That is how I felt then. Today I'm energized with purpose.
I found a support group online - the non-profit EFFORTS, begun
by COPD'rs, run by COPD'rs and filled with folks like me
working to change the world's awareness of COPD. I want other
lung folks to know they are not alone and how they can lead
the best quality of life possible. I want to see Spirometry
tests for patients. common place among physicians - to catch
COPD early - before it is too late. Other than stop smoking,
the single most important thing Lungers can do for themselves
is exercise.
And from the time I learned of the
American Lung Association® of Washington
's
Big Ride Across America, it is my dream - my goal - to
ride it in 2005." - Sharon |